OECD Digital Economy Papers

2071-6826 (online)
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The OECD Directorate for Science, Technology and Innovation (STI) undertakes a wide range of activities to better understand how information and communication technologies (ICTs) contribute to sustainable economic growth and social well-being. The OECD Digital Economy Papers series covers a broad range of ICT-related issues and makes selected studies available to a wider readership. They include policy reports, which are officially declassified by an OECD Committee, and occasional working papers, which are meant to share early knowledge.

Big Data for Advancing Dementia Research

An Evaluation of Data Sharing Practices in Research on Age-related Neurodegenerative Diseases You or your institution have access to this content

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Ulrike Deetjen1, Eric T. Meyer1, Ralph Schroeder1
Author Affiliations
  • 1: University of Oxford, United Kingdom

12 Mar 2015
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Dementia is increasing in prevalence, and to date has no cure or treatment. One element in improving this situation is using and sharing data more widely to increase the power of research. Further, moving beyond established medical data into big data offers the potential to tap into routinely collected data from both within and outside the health system. In this report, we examine four exemplar data sharing initiatives to better understand data sharing practices in dementia research and recommend the next steps required to move forward, which will require addressing structural issues including aligning incentives and mindsets toward data sharing.
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