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Dementia Research and Care

Can Big Data Help?

image of Dementia Research and Care

OECD countries are developing strategies to improve the quality of life of those affected by dementia and to support long-term efforts for a disease-modifying therapy or cure. The OECD jointly hosted an international workshop in Toronto with the Ontario Brain Institute (OBI) and the Institute of Health Policy, Management and Evaluation (IHPME), University of Toronto on 14-15 September 2014. The aim of the workshop was to advance international discussion of the opportunities and challenges, as well as successful strategies, for sharing and linking the massive amounts of population-based health and health care data that are routinely collected (broad data) with detailed clinical and biological data (deep data) to create an international resource for research, planning, policy development, and performance improvement. The workshop brought together leading researchers and academics, industry and non-government experts to provide new insights into the opportunities and challenges in making “broad and deep” data a reality – from funding to data standards, to data sharing, to new analytics, to protecting privacy, and to engaging with stakeholders and the public. Government leadership and public-private partnership will be needed to create and sustain big data resources, including financing for data infrastructure and incentives for data sharing.

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Foreword and Acknowledgments

G8 countries made a bold and ambitious commitment to find a cure or diseasemodifying therapy for dementia by 2025. This commitment has been a catalyst for global action to improve the health and social care of people with dementia and to accelerate innovation to discover new therapies to prevent or limit this disease. International collaboration is critical to encourage multi-disciplinary, cross-border research and to enhance knowledge transfer of effective solutions. The UK Department of Health along with G7 countries, the OECD and the WHO are leading a series of projects, workshops and events in 2014-15 toward solutions to different aspects of this challenge, ranging from drug discovery through to better health care.

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